The paediatric Cystic Fibrosis team at University Hospital of South Manchester NHS Foundation Trust (UHSM) has been given a prestigious Quality Improvement Award in the first ever UK Cystic Fibrosis Registry awards.
The registry committee were so impressed with the improvements that the team have made to data collection and the efforts taken to measure the impact of this for young Cystic Fibrosis patients, that they choose UHSM’s case study as the winning entry for 2015.
The team, which has been in place for around four years, is made up of a consultant, nurse specialist, physiotherapist, dieticians and database clerk. The case study focused on how the team had used the National CF data registry to provide focussed information and early identification and intervention to prevent further deterioration in our young patients.
Consultant Dr Naveen Rao, said; “Since the appointment of a dedicated paediatric CF team, our objective was to enhance quality data input to include every patient encounter, particularly to improve patient care.
“We are now able to visually demonstrate a much more useful patient report, which exhibits a direct correlation between weight and lung function, increasing patient involvement in care and education.
“The visual guidance has helped enable patients, and their parents, to realise that without adherence to treatment regimens and active intervention, lung function would continue to decline. Therefore, it’s had really a positive impact over the last 12 months.”
The team were also invited to present this project at the UK Cystic Fibrosis Registry Annual Meeting on 3 July, in Nottingham.
With the enhanced use of this database, the team have been able to highlight when interventions have been instigated, which has in turn led to positive effects on patient outcomes.
The improved quality data will also enhance the transition process from paediatric to adult services and may also be used for future research studies.
“This tool is something we had been pioneering and has improved the quality of service we’re able to offer to patients, so we’re really pleased to have been given this external recognition”
“It’s allowed us to identify earlier where interventions were necessary, so we can give better care and we hope to build on this success further,” added Dr Rao.